November 21, 2014

Interdisciplinary Journey Into Ancient Egypt

Ancient Egypt Title Photo

Each year I set mini goals throughout the year.   Benchmarks, so to speak, to get through all of the work we *should* finish that year.   This is an Ancient History year in our rotation and I set a goal to be done with Ancient Egypt by Thanksgiving.  Last time through, we got a *little* stuck in Ancient Egypt and never really did the Greeks and Romans justice.  By some sort of miracle, even with everything else going on, we are actually finishing up right on time!

Here is our overview of Ancient Egypt.

November 19, 2014

The Long(er) Journey

The Journey So Far

September 10th: 18 Weeks, 2 Days- Woke up with bright red bleeding, went to ER diagnosed with PPROM
September 10th-12th-  In hospital bedrest for super hydration and antibiotics
September 12th- 15th- Full bedrest at home
September 15th: 19 Weeks- Referred to Mayo Clinic
September 16th- Seen at Mayo Clinic, Diagnosed with bilateral renal agenesis (no kidneys), no bladder, and severe placenta previa, advised to have an abortion
September 16th- 30th-  Light bedrest, no driving, required "supervision" to be alone

November 18, 2014

On The Road Again

Heading back to Mayo Clinic today and would appreciate your prayers.  I don't know if this is going to be a routine visit, plan making, or actual action taking.

We are meeting with our neonatologist and our perinatologist.   On the agenda is discussing promoting lung development so that Siena's lungs will be mature enough (after 15-20 weeks without amniotic fluid at the anticipated time of birth) for her kidney form and function to be evaluated/diagnosed at that time.  Since all testing has proved mostly inconclusive getting her lungs healthy is her best shot medically.  (Not that we have stopped hoping, praying, and knowing that her best hope isn't medical in the first place.)

From here on out, we are in highly uncharted territory.  In addition to it (whatever it is) being a rare abnormality, it is a rare situation that we would like to try to save her if we can.  Only a few babies have successfully survived past the first week without kidneys (there are two that I know of, however, both baby girls currently on dialysis awaiting transplant as of the most recent report I could find).  This means there are no protocols or research or anything else to really guide our doctors.

Last time I talked to them, however, they seem willing to try and see what we can do.  Our perinatologist actually took the initiative to say we should work with a designated neonatologist NOT from the palliative care team to coordinate her care which I see as a huge sign they really are going to fight for her now.  She even asked if there was one we had met with we felt most comfortable with.  The NICU doctors have previous noted that Siena needs to prove herself as a fighter (I think she's done a good job, yes?).   I'm starting to think we needed to make our own *fight* clear as well.

Being good academically minded people, we aren't afraid to drop *publication potential* carrots in front of them. Tim speaks fluent research!

In the meantime, we will wait for God to finish what He has started!

November 13, 2014

MRI Update

After waiting weeks for the MRI because it "doesn't rely on fluid for imaging" the results finally popped up in my online chart and almost every finding was "hampered" or "difficult to discern" due to "lack of appreciable fluid"

Of interesting note, her lungs were gestationally as expected in development, etc despite already having been without fluid for 6-7 weeks at the time of the MRI.  They also observed normal meconium among other random thoughts on gallbladder (seen), spleen (maybe seen), brain (not just seen or normal, but "grossly normal" whatever that means) and other notes (anatomy difficult to see, particularly the pelvic area- more not seen than seen- all attributed to lack of fluid).

November 11, 2014

Kenna's Legacy

While Siena's legacy is in its early development, her big sister Kenna's legacy continues to grow.  Over the past seven and a half years, it has become abundantly clear that the footprint she left on our family and the role she continues to play is not going to be small.  Here are five ways that Kenna has and continues to impact the world around her...

November 10, 2014

Siena's Legacy

I've been thinking a lot lately about what Siena's legacy will be.

What will her story say?

So often we dream about the amazing impact our child will have once we finish with them, once they have grown, and are ready to take their place in the real world.

We often delude ourselves just how much say we ultimately have in that process.

November 6, 2014

The Evolution of Our School Day


 I mentioned on the Work and Play Facebook page last week, that the kids did some work within the classical(ish) approach while I was in the hospital.  Classical has always been a cornerstone of our approach to history and I've often used concepts of narration, dictation, copy work, and memorization as supplements to our language study.  Since I relied on the approach more heavily when we lived in Utah and didn't have the space for as much Montessori, I had several easy to use resources to pull out for other people to use.