Comments on Work And Play, Day By Day: Why Gluten Free?

Hi Heidi....I am so glad to hear your little boy i...

2010-03-29T10:20:05.000-05:00

Hi Heidi....I am so glad to hear your little boy is ok....I "lived" through a childhood of difficulties into adulthood but to find I had celiac disease. I thought I was naturally skinny...LOL! Now, I weigh more than I should, but I am getting healthy! Blessings, Karen Tyler

What about a noninvasive test, genetic testing? En...

2009-10-27T15:45:21.718-05:00

What about a noninvasive test, genetic testing? Enterolab https://www.enterolab.com
I wouldn't ever go back on a diet containing gluten, I agree with you. Just an suggestion

You can also find out additional information on my Gluten free "support group" web site (testing)

www.glutenfreefoodsrock.com

Thanks for sharing. I am interested in learning mo...

2009-10-20T22:37:33.414-05:00

Thanks for sharing. I am interested in learning more, as it is come out in the forefront more lately.
I am so happy for you that you got your little man healthy- I wouldn't take him off the diet either!

Special K- Thanks, he has had some of those tests...

2009-10-20T20:35:49.953-05:00

Special K- Thanks, he has had some of those tests done and they were inconclusive. The problem with redoing any of the antibody bloodwork at this point it is the same as the biopsy. He would have to go back on gluten for 6 weeks (at least) before the tests would be conclusive. That is why we decided to stick with the first antibody test and follow up that was done. I'm glad your friend was finally able to be accurately diagnosed!

So awesome that you wrote it all out. My sis had t...

2009-10-20T18:20:54.565-05:00

So awesome that you wrote it all out. My sis had tummy trouble and was incorrectly diagnosed with everthing under the sun from age 13. She always had food "sensitivities" like dairy and pork. Things got bad and she started seeing a black spot. The was the moment when someone diagnosed her and she went on the diet. She got married and tried for a baby and found out for SURE she has celiac as well as PCOS, which has kept her on the diet. She would throw up all the time so randomly and never lose weight. Anyway, her specialist for celiac said there are 6 markers, 4 blood tests, DNA and feeling better on the gluten-free diet was diagnoser #6. So keep it open in the future, it doesnt' have to be an internal exam, find a specialist if he needs the diagnosis, someone who knows what the labs to take actually ARE. Hugs for figuring out the issue, my friend's little one was 9 months when they figured out his massive list of allergies.Thank god for FAAN.

Ali we did not have any rashes. There is a glute...

2009-10-20T16:55:41.944-05:00

Ali we did not have any rashes.
There is a gluten related skin condition known as Dermasomething Hyposometime (its called DH most of the time I see it written). My friend Melissa has a son who has skin involvement in his gluten reactions.

I haven't read Elisabeth Hasselbeck's book, but I would eventually like to. The reviews have been very mixed on the sites I've seen and I'd love to hear what she has to say!

Good Luck with your son!

Did you have any issues with him having rashes, li...

2009-10-20T16:18:39.782-05:00

Did you have any issues with him having rashes, like diaper rash, but not?

I've started wondering about this for my son, after reading excerpts from Elisabeth Hasselbeck's book...

I'm so glad you have found what works & are sticking to it! Good luck with continued success!

Thanks! And yay for breastfeeding!

2009-10-20T12:41:21.552-05:00

Thanks! And yay for breastfeeding!

Evanspor- ask away! I only didn't include it ...

2009-10-20T12:15:19.978-05:00

Evanspor- ask away! I only didn't include it in the post because most people probably didn't want to read about it.

Caleb would have 6-8 (sometimes more) very soft to loose stools every day. When he was sick after being in the hospital and again right before he was diagnosed he went to liquid stools for 2-3 weeks. I don't know how we would have kept him hydrated if he wasn't breastfeeding!

YES! I'm not getting tested either. Why? Be...

2009-10-20T12:03:12.185-05:00

YES! I'm not getting tested either. Why? Because the only cure for CD is a gluten free diet. So, I'm not willing to go through all that, spend that much money for them to tell me I can't have gluten. Kudos to you for switching Dr's. It's hard I know...I've been through 3! Keep the receipes coming!

I don't know whether this is an appropriate qu...

2009-10-20T12:00:10.791-05:00

I don't know whether this is an appropriate question, but can I ask what the bowel movement symptoms were like?